Did you know we have a podcast? Search for Don't Get Lippy on iTunes, Spotify or Amazon Music!

News RSS



Your Story - Azaelya & Jaxson

Hello there cleft families! My name is Azaelya and I’m a proud cleft mom. I’m 23 years old and at 22 I had my first son, Jaxson.  My pregnancy was a surprise but a happy one!  I found out I was pregnant at 8 weeks and at 12 weeks I had my first scan where nurses and I first noticed a difference on ultrasound. At that time Doctors recommended I have a CVS exam done (cells taken directly from the placenta) in attempts to get a closer look at what might be wrong.  After very negative experience with the beginning half of the CVS I decided to back out of the procedure. At this point the Doctor suggested termination. I...

Continue reading



What causes a cleft lip and/or palate?

It's all down to smoking, drinking, not taking folic acid, eating sushi, taking medication and it's hereditary....X  In actual fact, it seems like no-one has a specific answer.  I have spoken with other mothers who have children with clefts who have unfortunately been made to feel it was something THEY did that caused the condition.  They had been questioned if they had been taking their folic acid in time, been made to feel bad that they may have drunk alcohol during pregnancy before they knew they were pregnant and heaven forbid they'd eaten sushi in early days of pregnancy.  I think I 'got lucky' in that respect because having a cleft already, it was more about tackling the guilt that...

Continue reading



Don't Get Lippy - The Reason

In early in 2018, I found out I was pregnant with my son, Will.  At week 13 of my pregnancy, I had a bleed.  Not serious enough for the NHS to scan me, we paid for a private scan for reassurance.  Thankfully the scan showed no concerns and Will was healthy.    Whilst we were there, the sonographer asked if I wanted him to check and see if Will had a cleft lip and palate - the condition I was born with.  I was surprised that he offered to do this but said yes anyway.  Within a few seconds, it was confirmed that a cleft lip was visible (he couldn't see if the palate was affected and this would only...

Continue reading



A little story about me!

Name: JenAge: 32 (just...!) Star sign: CancerianLives: Kent OK...we're done!  Just kidding.  I was born in 1987 to my Mum & Dad and I have one older brother.  I was born in Oxford and neither of my parents were expecting me to pop out with a Cleft Lip and Palate.  Scans had showed me to be a healthy baby and my brother didn't have any issues, so my parents were not on high alert.  As I was handed to my mum, the midwife said 'congratulations, don't worry, we can fix it'.  Even to this day, my mum says she was so grateful for that midwife's reaction and comment.  My hospital stay lasted about 10 days, as they needed to scan me...

Continue reading



What is a Cleft Lip and Palate?

In very basic terms, the word cleft means a split or divide.   When we talk about cleft lips, the severity and type ranges.  Someone may have a split on one side of the lip, known officially as a unilateral cleft lip, which can be just a small notch out of the lip to an wide gap under the left or right nostril.  Someone known to have a bilateral cleft lip will have two splits in the lip which generally fall directly under both nostrils.  A bilateral cleft lip is what myself and my son, Will were both born with. You can get a complete or incomplete cleft lip.  A complete cleft lip means there is no attachment whatsoever from...

Continue reading